Remembering Alexis
Finding Perspective in Love and Loss   Margaret Marshall Rhyne  

Here are a few helpful links...

NASDDDShttp://www.nasddds.org/.  The National Association of State Directors of Developmental Disabilities Services.  A non-profit organization dedicated to improving and expanding public services to people with intellectual and other developmental disabilities. 

NICHCYhttp://www.nichcy.org/.  National Dissemination Center for Children with Disabilities.  A central source for information on disabilities in infants, toddlers, children, and youth; IDEA, the law authorizing special education; No Child Left Behind as it related to children with disabilities; and research-based information on effective educational practices.  Website includes state-by-state lists of organizations and agencies that address disability-related issues. 

NCD:  National Council on Disabilityhttp://www.ncd.gov.  An independent federal agency making recommendations to the President and the Congress on policies, programs, practices and procedures that guarantee equal opportunity for all individuals with disabilities regardless of the nature or severity of the disability and to empower individuals with disabilities to achieve economic self-sufficiency, independent living and inclusion and integration into all aspects of society.

Autism Society of America:  http://www.autism-society.org/Exists to improve the lives of all of those affected by autism. 

Brain Injury Association of Americawww.biausa.org.  National organization serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI).  Together with its network of more than 540 chartered state affiliates as well as hundreds of local chapters and support groups across the country, BIAA provides information, education and support to assist the 5.3 million Americans currently living with traumatic brain injury and their families. 

Attention Deficit Disorder Associationwww.add.org.  Provides information, resources and networking to adults with AD/HD and to the professionals who work with them.

Epilepsy Foundationwww.epilepsyfoundation.org.  Dedicated to helping people with epilepsy, working to solve its problems, and supporting research to find a cure.

Easter Sealswww.easterseals.com.  Helps individuals with disabilties and special needs and their families live better lives.  Offers a variety of services from job training to physical rehabilitation to help people with disabilities address life's challenges and achieve personal goals.

National Association for Down Syndromewww.nads.org.  Mission is to ensure that all persons with Down Syndrome have the opportunity to achieve their potential in all aspects of community life.  Information, support, advocacy.

Cystic Fibrosis Foundationwww.cff.org.  To assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

United Cerebral Palsywww.ucp.org.  The leading source of information on cerebral palsy and a pivotal advocate for the rights of persons with any disability.  To advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.

CHADDwww.chadd.org.  Children and Adults with Attention-Deficit /Hyperactvity Disorder.  16,000 members in 200 local chapters throughout the U.S.  support for individuals, parents, teachers, professionals and others.

Tourette Syndrome Association:  www.tsa-usa.org.  To identify the cause, find the cure, and control the effects of Tourette.  Resources and referrals.

Spina Bifada Associationwww.spinabifidaassociation.org.  Education, advocacy, research, and service. 

National Multiple Sclerosis Societywww.nationalmssociety.org.  Funds research, drives change through advocacy, facilitates professional education, provides programs and services that help people with MS and their families move forward.  50 state chapters.

The ARCwww.thearc.org.  The world's largest community-based organization of and for people with intellectual and developmental disabilities.  140,000 members in 850 state and local chapters.

Learning Disabilities Association of Americawww.idanatl.org.  Advocates for individuals with learning disabilities through 200 state and local affiliates in 42 states and Puerto Rico and 27 countries.

National Alliance for Grieving Childrenhttp://www.nationalallianceforgrievingchildren.org/.  Provides a network for nationwide communication between hundreds of children's bereavement centers.  Find a list of children's and teen's grief centers by state at:   www.nationalallianceforgrievingchildren.org/centers.aspx.

The Dougy Center:   http://www.dougy.org/.  The first center in the United States to provide peer support groups for grieving children.  The Dougy Center has served more than 20,000 children, teens and families since 1982.  Webisite provides an extensive list of grief support organizations by state.  The National Center provides support and training nationally and internationally to individuals and organizations seeking to support children in grief.

Cerebral Palsy Resoures - Medical Guide:  http://www.worldmedassist.com/cerebral-palsy-resources-a-medical-guide/.   Defines Cerebral Palsy and gives information on causes, symptoms, diagnosis, treatment and care.